
VITAL FIVE FOUNDATION
Mission
We build community, support and empower medically complex individuals with rare diseases and syndromes, and their families, while also educating the public.
Our Story
The Founders, Rome and Falesha Johnson were inspired to create Vital Five Foundation from their own experience of parenting a medically complex child with a rare disease. Their daughter Caliyah was diagnosed with Pfeiffer Syndrome at birth, and their journey as first-time parents was filled with many obstacles from day one. They could not have gotten by without their community and want to be the source of support for other families just like them. They know how it is, to feel alone, to continually advocate for your child, and need to lean on others for financial support.

DONATE
By giving to the foundation, your charitable donation will directly benefit, and improve the lives of children and families across the country.
